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Prenatal testing for late-onset neurogenetic diseases
Author:
ISBN: 1859960197 Year: 2002 Publisher: Oxford BIOS scientific publ.

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Abstract

This book addresses the biological, moral and legal issues which arising prenatal testing of late onset neurogenetic disease. The contributors focus specifically on Huntington's Disease, which is used as a model for other late onset neurogenetic diseases. The ethical and legal aspects of prenatal testing and preimplantation genetic diagnosis are discussed with reference to case histories. This volume will provide valuable insights for all those involved in dealing with these challenging issues.

Keywords

Prenatal Diagnosis. --- Genetic Counseling --- Genetic Predisposition to Disease. --- Genetic Testing --- Heredodegenerative Disorders, Nervous System --- Neoplastic Syndromes, Hereditary --- #GBIB:CBMER --- prenatale diagnostiek (prenatale test) --- pre-implantatie genetische diagnose (PGD) --- late-onset neurogenetische aandoening --- Genetic Screening --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- Prenatal Diagnosis --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Genetic Privacy --- Predisposition, Genetic --- Susceptibility, Genetic --- Genetic Predisposition --- Genetic Susceptibility --- Genetic Predispositions --- Genetic Susceptibilities --- Predispositions, Genetic --- Susceptibilities, Genetic --- Disease Susceptibility --- Anticipation, Genetic --- Genetic Association Studies --- Gene-Environment Interaction --- Antenatal Diagnosis --- Antenatal Screening --- Diagnosis, Antenatal --- Diagnosis, Intrauterine --- Prenatal Screening --- Diagnosis, Prenatal --- Intrauterine Diagnosis --- Antenatal Diagnoses --- Antenatal Screenings --- Diagnoses, Antenatal --- Diagnoses, Intrauterine --- Diagnoses, Prenatal --- Intrauterine Diagnoses --- Prenatal Diagnoses --- Prenatal Screenings --- Screening, Antenatal --- Screening, Prenatal --- Screenings, Antenatal --- Screenings, Prenatal --- Neonatal Screening --- Genetic Services --- psychology. --- diagnostic prénatal (test prénatal, DPN) --- diagnostique génétique pré-implantatoire (DPI, diagnostic préimplantatoire) --- maladie neurogénétique tardive --- diagnosis --- genetics --- Fetal Diagnosis --- Fetal Imaging --- Fetal Screening --- Diagnosis, Fetal --- Fetal Diagnoses --- Fetal Imagings --- Fetal Screenings --- Imaging, Fetal --- Screening, Fetal --- psychology

Self-trust and reproductive autonomy
Author:
ISBN: 0262279592 0585442711 0262263777 9780585442716 9780262279598 9780262134088 9780262263771 Year: 2002 Publisher: Cambridge, Mass. MIT Press

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Abstract

A study of the importance of self-trust for women's autonomy in reproductive health. The power of new medical technologies, the cultural authority of physicians, and the gendered power dynamics of many patient-physician relationships can all inhibit women's reproductive freedom. Often these factors interfere with women's ability to trust themselves to choose and act in ways that are consistent with their own goals and values. In this book Carolyn McLeod introduces to the reproductive ethics literature the idea that in reproductive health care women's self-trust can be undermined in ways that threaten their autonomy. Understanding the importance of self-trust for autonomy, McLeod argues, is crucial to understanding the limits on women's reproductive freedom. McLeod brings feminist insights in philosophical moral psychology to reproductive ethics, and to health-care ethics more broadly. She identifies the social environments in which self-trust is formed and encouraged. She also shows how women's experiences of reproductive health care can enrich our understanding of self-trust and autonomy as philosophical concepts. The book's theoretical components are grounded in women's concrete experiences. The cases discussed, which involve miscarriage, infertility treatment, and prenatal diagnosis, show that what many women feel toward themselves in reproductive contexts is analogous to what we feel toward others when we trust or distrust them. McLeod also discusses what health-care providers can do to minimize the barriers to women's self-trust in reproductive health care, and why they have a duty to do so as part of their larger duty to respect patient autonomy.

Keywords

Ethics, Professional --- Principle-Based Ethics --- Reproductive Physiological Processes --- Bioethics --- Persons --- Delivery of Health Care --- Freedom --- Genital Diseases, Female --- Psychology, Social --- Humanism --- Psychological Phenomena and Processes --- Interpersonal Relations --- Genital Diseases, Male --- Investigative Techniques --- Therapeutics --- Diagnostic Techniques, Obstetrical and Gynecological --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Ethics --- Human Rights --- Named Groups --- Health Care Quality, Access, and Evaluation --- Behavior and Behavior Mechanisms --- Female Urogenital Diseases --- Male Urogenital Diseases --- Psychiatry and Psychology --- Diagnostic Techniques and Procedures --- Reproductive Physiological Phenomena --- Social Control, Formal --- Philosophy --- Diagnosis --- Health Care --- Humanities --- Diseases --- Reproductive and Urinary Physiological Phenomena --- Female Urogenital Diseases and Pregnancy Complications --- Health Care Economics and Organizations --- Phenomena and Processes --- Sociology --- Social Sciences --- Anthropology, Education, Sociology and Social Phenomena --- Personal Autonomy --- Prenatal Diagnosis --- Ethics, Clinical --- Social Values --- Vulnerable Populations --- Physician-Patient Relations --- Feminism --- Trust --- Reproduction --- Reproductive Techniques --- Professional-Patient Relations --- Infertility --- Women --- Pregnant Women --- Medicine --- Health & Biological Sciences --- Gynecology & Obstetrics --- Pregnant Woman --- Women, Pregnant --- Woman, Pregnant --- Girls --- Woman --- Women's Groups --- Girl --- Women Groups --- Women's Group --- Reproductive Sterility --- Sterility, Reproductive --- Sub-Fertility --- Subfertility --- Sterility --- Contacting Clients --- Professional Patient Relationship --- Client, Contacting --- Clients, Contacting --- Contacting Client --- Professional Patient Relations --- Professional Patient Relationships --- Professional-Patient Relation --- Relation, Professional-Patient --- Relations, Professional-Patient --- Relationship, Professional Patient --- Relationships, Professional Patient --- Reproduction Technics --- Reproduction Techniques --- Reproductive Technologies --- Technology, Reproductive --- Reproductive Technology --- Reproduction Technic --- Reproduction Technique --- Reproductive Technique --- Technic, Reproduction --- Technics, Reproduction --- Technique, Reproduction --- Technique, Reproductive --- Techniques, Reproduction --- Techniques, Reproductive --- Technologies, Reproductive --- Human Reproductive Index --- Human Reproductive Indexes --- Reproductive Period --- Human Reproductive Indices --- Index, Human Reproductive --- Indexes, Human Reproductive --- Indices, Human Reproductive --- Period, Reproductive --- Periods, Reproductive --- Reproductive Index, Human --- Reproductive Indices, Human --- Reproductive Periods --- Feminist Ethics --- Ethics, Feminist --- Doctor Patient Relations --- Physician Patient Relations --- Physician Patient Relationship --- Doctor-Patient Relations --- Doctor Patient Relation --- Doctor-Patient Relation --- Physician Patient Relation --- Physician Patient Relationships --- Physician-Patient Relation --- Relation, Doctor Patient --- Relation, Doctor-Patient --- Relation, Physician Patient --- Relation, Physician-Patient --- Relations, Doctor Patient --- Relations, Doctor-Patient --- Relations, Physician Patient --- Relations, Physician-Patient --- Relationship, Physician Patient --- Relationships, Physician Patient --- Disadvantaged --- Patients, Underserved --- Populations, Underserved --- Sensitive Population Groups --- Sensitive Populations --- Group, Sensitive Population --- Groups, Sensitive Population --- Patient, Underserved --- Population Group, Sensitive --- Population Groups, Sensitive --- Population, Sensitive --- Population, Underserved --- Population, Vulnerable --- Populations, Sensitive --- Populations, Vulnerable --- Sensitive Population --- Sensitive Population Group --- Underserved Patient --- Underserved Patients --- Underserved Population --- Underserved Populations --- Vulnerable Population --- Value Orientation --- Values, Social --- Value Orientations --- Clinical Ethics --- Clinical Medicine --- Antenatal Diagnosis --- Antenatal Screening --- Diagnosis, Antenatal --- Diagnosis, Intrauterine --- Prenatal Screening --- Diagnosis, Prenatal --- Intrauterine Diagnosis --- Antenatal Diagnoses --- Antenatal Screenings --- Diagnoses, Antenatal --- Diagnoses, Intrauterine --- Diagnoses, Prenatal --- Intrauterine Diagnoses --- Prenatal Diagnoses --- Prenatal Screenings --- Screening, Antenatal --- Screening, Prenatal --- Screenings, Antenatal --- Screenings, Prenatal --- Free Will --- Self Determination --- Autonomy, Personal --- Science, Social --- Sciences, Social --- Social Science --- General Social Development and Population --- Healthcare Economics and Organizations --- Physiology, Reproductive and Urinary --- Reproductive and Urinary Physiological Phenomenon --- Reproductive and Urinary Physiology Concepts --- Reproductive and Urinary Physiology Phenomenon --- Reproductive and Urinary Tract Physiological Concepts --- Reproductive and Urinary Tract Physiological Phenomena --- Reproductive and Urinary Tract Physiological Phenomenon --- Reproductive and Urinary Tract Physiology --- Reproductive and Urinary Physiology --- Reproductive and Urinary Physiology Phenomena --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Antemortem Diagnosis --- Diagnoses and Examinations --- Examinations and Diagnoses --- Postmortem Diagnosis --- Antemortem Diagnoses --- Diagnoses --- Diagnoses, Antemortem --- Diagnoses, Postmortem --- Diagnosis, Antemortem --- Diagnosis, Postmortem --- Postmortem Diagnoses --- Disease --- Philosophical Overview --- Hedonism --- Stoicism --- Overview, Philosophical --- Overviews, Philosophical --- Philosophical Overviews --- Philosophies --- Regulation --- Social Control --- Control, Social --- Controls, Social --- Formal Social Control --- Formal Social Controls --- Regulations --- Social Controls --- Reproductive Physiologic Concepts --- Reproductive Physiological Phenomenon --- Reproductive Physiological Process --- Reproductive Physiological Concepts --- Concept, Reproductive Physiologic --- Concept, Reproductive Physiological --- Concepts, Reproductive Physiologic --- Concepts, Reproductive Physiological --- Phenomena, Reproductive Physiological --- Phenomenon, Reproductive Physiological --- Physiologic Concept, Reproductive --- Physiologic Concepts, Reproductive --- Physiological Concept, Reproductive --- Physiological Process, Reproductive --- Physiological Processes, Reproductive --- Process, Reproductive Physiological --- Processes, Reproductive Physiological --- Reproductive Physiologic Concept --- Reproductive Physiological Concept --- Diagnostic Technics and Procedures --- Technics and Procedures, Diagnostic --- Techniques and Procedures, Diagnostic --- Male Genitourinary Diseases --- Genitourinary Disease, Male --- Genitourinary Diseases, Male --- Male Genitourinary Disease --- Male Urogenital Disease --- Urogenital Disease, Male --- Urogenital Diseases, Male --- Female Genitourinary Diseases --- Female Genitourinary Disease --- Female Urogenital Disease --- Genitourinary Disease, Female --- Genitourinary Diseases, Female --- Urogenital Disease, Female --- Urogenital Diseases, Female --- Healthcare Quality, Access, and Evaluation --- Equal Rights --- Equal Right --- Human Right --- Right, Equal --- Right, Human --- Rights, Equal --- Rights, Human --- Egoism --- Ethical Issues --- Metaethics --- Moral Policy --- Natural Law --- Situational Ethics --- Ethical Issue --- Ethics, Situational --- Issue, Ethical --- Issues, Ethical --- Law, Natural --- Laws, Natural --- Moral Policies --- Natural Laws --- Policies, Moral --- Policy, Moral --- Diagnostic Technic, Obstetric and Gynecologic --- Diagnostic Technic, Obstetrical and Gynecological --- Diagnostic Technics, Obstetric and Gynecologic --- Diagnostic Technics, Obstetrical and Gynecological --- Diagnostic Technique, Obstetric and Gynecologic --- Diagnostic Technique, Obstetrical and Gynecological --- Diagnostic Techniques, Obstetric and Gynecologic --- Obstetric and Gynecologic Diagnostic Technic --- Obstetric and Gynecologic Diagnostic Technics --- Obstetric and Gynecologic Diagnostic Technique --- Obstetric and Gynecologic Diagnostic Techniques --- Obstetrical and Gynecological Diagnostic Technic --- Obstetrical and Gynecological Diagnostic Technics --- Obstetrical and Gynecological Diagnostic Technique --- Obstetrical and Gynecological Diagnostic Techniques --- Technic, Obstetric and Gynecologic Diagnostic --- Technic, Obstetrical and Gynecological Diagnostic --- Technics, Obstetric and Gynecologic Diagnostic --- Technics, Obstetrical and Gynecological Diagnostic --- Technique, Obstetric and Gynecologic Diagnostic --- Technique, Obstetrical and Gynecological Diagnostic --- Techniques, Obstetric and Gynecologic Diagnostic --- Techniques, Obstetrical and Gynecological Diagnostic --- Therapy --- Treatment --- Therapeutic --- Therapies --- Treatments --- Investigative Technics --- Investigative Technic --- Investigative Technique --- Technic, Investigative --- Technics, Investigative --- Technique, Investigative --- Techniques, Investigative --- Male Genital Diseases --- Disease, Male Genital --- Diseases, Male Genital --- Genital Disease, Male --- Male Genital Disease --- Gender Issues --- Husband-Wife Communication --- Partner Communication --- Relations, Gender --- Gender Relations --- Social Interaction --- Communication, Husband-Wife --- Communication, Partner --- Communications, Husband-Wife --- Communications, Partner --- Gender Issue --- Gender Relation --- Husband Wife Communication --- Husband-Wife Communications --- Interaction, Social --- Interactions, Social --- Interpersonal Relation --- Issue, Gender --- Issues, Gender --- Partner Communications --- Relation, Gender --- Relation, Interpersonal --- Relations, Interpersonal --- Social Interactions --- Psychologic Processes and Principles --- Social Psychology --- Psychologies, Social --- Social Psychologies --- Female Genital Diseases --- Gynecologic Diseases --- Diseases, Female Genital --- Diseases, Gynecologic --- Female Genital Disease --- Genital Disease, Female --- Gynecologic Disease --- Libertarianism --- Liberty --- Freedoms --- Person --- Biomedical Ethics --- Health Care Ethics --- Ethics, Biomedical --- Ethics, Health Care --- Principlism --- Ethic, Principle-Based --- Ethics, Principle-Based --- Principle Based Ethics --- Principle-Based Ethic --- Professional Ethics --- Ethic, Professional --- Professional Ethic --- ethics --- diagnosis --- methods --- therapy --- Pregnancy --- Maternal-Fetal Relations --- Fertility --- Pharmacist-Patient Relations --- Pharmacist Patient Relations --- Pharmacist-Patient Relation --- Relation, Pharmacist-Patient --- Relations, Pharmacist-Patient --- Truth Disclosure --- Teach-Back Communication --- Selective Breeding --- Reproductive Medicine --- Reproductive Health Services --- Women's Rights --- Value of Life --- Virtues --- Social Norms --- Ethicists --- Ethics Committees, Clinical --- Ethics Consultation --- Genetic Testing --- Neonatal Screening --- Preimplantation Diagnosis --- Genetic Services --- Self Concept --- Professional Autonomy --- Paternalism --- Pharmacy Philosophy --- Pharmacy Philosophies --- Philosophies, Pharmacy --- Philosophy, Pharmacy --- Public Policy --- Sensitivity and Specificity --- Social Justice --- Human Rights Abuses --- Censorship, Research --- Friends --- Emotional Intelligence --- Psychologic Processes --- Psychological Processes --- Phenomena, Psychological --- Processes, Psychologic --- Processes, Psychological --- Psychological Phenomenas --- Psychological Processe --- Gynecology --- Ethics, Medical --- Ethical Theory --- Professional Misconduct --- Psychology, Perceptual --- Perceptual Psychology --- Collective Human Rights --- Linguistic Rights --- Right to Housing and Shelter --- Rights of Indigenous Peoples --- Human Rights, Collective --- Indigenous Peoples Rights --- Rights, Collective Human --- Rights, Linguistic --- Freedom of Religion --- Religious Freedom --- Right to Movement --- Freedom, Religious --- Freedoms, Religious --- Movement, Right to --- Movements, Right to --- Religion Freedom --- Religion Freedoms --- Religious Freedoms --- Right to Movements --- to Movement, Right --- to Movements, Right --- Human reproductive technology --- Human reproduction --- Autonomy. --- Medical ethics. --- Bioethics. --- Trust. --- Ethics. --- Moral and ethical aspects. --- Health aspects. --- PHILOSOPHY/Ethics & Bioethics --- PHILOSOPHY/General --- Deontology --- Ethics, Primitive --- Ethology --- Moral philosophy --- Morality --- Morals --- Philosophy, Moral --- Science, Moral --- Values --- Feminist ethics --- Emancipation of women --- Feminist movement --- Women's lib --- Women's liberation --- Women's liberation movement --- Women's movement --- Social movements --- Anti-feminism --- Trust (Psychology) --- Attitude (Psychology) --- Emotions --- Biology --- Biomedical ethics --- Life sciences --- Life sciences ethics --- Science --- Clinical ethics --- Health care ethics --- Medical care --- Professional ethics --- Nursing ethics --- Social medicine --- Independence --- Self-government --- International law --- Political science --- Sovereignty --- Emancipation --- Moral and ethical aspects

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